about rian

Hi! I just wanted to start this section with a “Thanks for reading my blog!” I wouldn’t be writing this if you weren’t here to read it.

A photo of me, at Outside Lands in San Francisco. This was the first event I went to in a wheelchair.

I’m Rian, a trans, non-binary and disabled activist and actor living in Sacramento, California. I started documenting my journey of navigating my life as a newly disabled person on my Instagram in 2018 after experiencing a brain injury, resulting in a diagnosis of Postural Orthostatic Tachycardia Syndrome (POTS). While being treated by several doctors including cardiologists, neurologists, rheumatologists, and geneticists, I was also revealed to have Ehlers Danlos Syndrome (EDS), a genetic disorder causing defects in my connective tissue.

Before I was sick, I had already came out to a handful of friends that I was non-binary. I didn’t feel comfortable with outwardly expressing my trans-ness beforehand, but I was getting weary of pretending to be a cis-person while I lived in a mindset and a body that I wasn’t comfortable with. After becoming chronically ill, I realized that life was too short to make everyone happy. And that the only way that I would be truly happy would be to live my own truth.

After attempting to re-enter the acting scene as a non-binary wheelchair user and experiencing ableism and transphobia in both fashion and theater, I had to learn to advocate for myself as a disabled and trans person, specifically the immediate needs for accessibility and accountability. Since then, I have found great friends and amazing organizations along the way that took a chance on me, and I really wouldn’t be this far without them.

So, this is my blog dedicated to living life through the obstacles of ableism and transphobia, raising awareness to others who may not have these challenges, and, hopefully, helping others like me not feel so alone.

xx, Rian

Published by disabledpunk

I’m Rian, a trans, non-binary and disabled activist and actor living in Sacramento, California. Just documenting my journey navigating through life as a trans disabled person living POTS, EDS, and queerness 💖

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